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Wren Dancer

Wren Dancer
Location
Atlasburg, Pennsylvania, usa
Birthday
October 20
Title
Genius
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Answers Tarot
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I am a tarot card reader, a writer, a healer, and a fitness teacher.

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APRIL 21, 2012 10:57PM

AIDS - The First Wave

Rate: 28 Flag

I was completely panicked in the small cell of a bathroom at the G.W. Hospital, where my best friend, Wm. D. Exfield, lay dying.  I remember the antiseptic hospital smell and the cold sheen of the stainless steel features.

William got AIDS in the first wave - so early that we called it cat leukemia then.  The list of things we didn't know was a very long one.

He looked like Jesus on the cross or like an Auschwitz survivor - like my grandmother on HER deathbed.  They all look the same in the end - the starving dead.  Especially their faces when there's nothing left but bone and skin.  

I had gone to see him at the hospital during the day - when the staff isn't so nice because there are never any visitors then.  

They were experimenting on him with drug protocols that made him hallucinate.  He pointed across the hall and said, "Do you see them?" (Nothing there.)

The inside of his mouth and nose were a bright blue-green, like a black mambo snake's, like a tree in a swamp.  It is very unnerving to see your best friend's insides glow-in-the dark blue-green - a color not known to belong there.  Ever.

I used to put lotion on his hands and feet and massage them, just to give him a little loving touch.  The nurses and the doctors wore moon suits, so nobody but his lover, Mark, ever touched him, except to stick him with needles and tubes and things.  He had been dying for YEARS now, but this was really the end.  

After I kissed him and waved good-bye, I could hear him crying as I walked down the hall.

As soon as I turned the corner, I SPRINTED to the bathroom, and, God help me, I stripped and scrubbed my whole body with soap and water and then rinsed and gargled with hydrogen peroxide, which the staff left there in the visitor's bathroom for this purpose.  

 Spitting and crying, I got dressed and went home.   

R.I.P. Wm. D. Exfield - kindest, funniest, smartest guy I have ever known.   

 

 

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aids, lgbt, friendship, hospital, health, death

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So much was unknown back then. I applaud your courage at visiting, touching, kissing. For all you knew such things could have been a death warrant for you.

Your fear AND your extraordinary caring shine through the beautifully written blog.

Welcome back!!

;-)
.
Such a warm, human response to a disease that so strips people of their dignity. Thanks for sharing this, I think you will find yourself a better person for it. The scene in the bathroom is so vivid, who among us would not do exactly the same thing--get rid of that evil!
Scary and awful and, at that point, about to be everywhere. We didn't know early on enough about how AIDS couldn't be transmitted. How awful to feel the need to clean yourself up like that from someone you cared about.
Thanks, everybody. It's great to be back. I love to remember my friend, whose picture I have on my desk in my room.
Powerful account Wren and there were far too many of them. I was wondering what year this was. The AIDS outbreak always held a special interest to me as I first read about it around late September/early October 1982 a couple of days before I was first sent on my decade long overseas jaunt.

The Village Voice had a very long article about this mystery ailment cutting a swath through the gay community. Haitians got included in the popular reporting some months later. If memory serves, which it mightn't, they were calling it GRID at that time. Gay-related Immune Deficiency. Within a year or so GRID was superseded by the more aptly named AIDS. And your showering was typical of the era. There was still discussion of whether kids with AIDS (HIV came some years after AIDS) should be banned from schools and whether or not it could be spread by mosquitoes or dentists.

I expect that younger folks won't appreciate the great divide between science and fear back in that time, though they might recognize the anti-science attitudes, shunning of awkward topics and underfunding of basic research in some of today's issues.
Thank God for you. William was not alone as so many, at that time, were.
People with your compassion are wonderful. We need more of you.

I heard a news story about 6-8 years ago suggesting that HIV/AIDS is not such a new disease. A British medical facility ran an HIV test on some 50 year old tissue samples from a young Naval officer who had died from tuberculosis. They came back positive. Since 50 years is the time limit for keeping tissues they weren't able to go any further back, but it made me feel better to know that this wasn't a new disease. I don't know what made it explode in the 80s and it is indeed a tragic illness, but not something that could have been prevented because it already existed.

Thanks for sharing your story.
Wren,welcome back.So great to see your laughing face again!!!Thank you for sharing this..William was so unlucky and that is the least I can say..Sometimes words are less that I want to really say.."I could hear him crying as I walked down the hall"...This is a tragedy....Soooo rated....An excellent friend here...Best regards Wren...
Rest in peace, William. He must have been so comforted by your steadfast love and friendship through the years, Wren Dancer...thanks for sharing these memories of your friend.
First, so pleased to see you again.
And, this is a wrenching, beautiful piece.
Well done essay, WD.
Oh my... reaching for tissue. We have missed you here, and this is why. You have such a gift to touch the human-ness in us. Have you read Clay Ball's post: HIV: Forgotten but not Gone? It is the BEST summary of the virus and how it is spread... I go back and read all of the time.
You are a brave and loving woman. Or should the loving come first? Loyal friend.
I didn't make it in time to my brother's bedside. My mother and sister were there, and it was years before I saw the haunting in their eyes disappear, especially in my mother's. That day, I know something died in her. Bless you for having the courage to touch your friend with your hands, your heart and your humanity.
Always good to see you, Wren. Fine, humane tribute. R
So many lost, so many abandoned... you did good.
Jesus, gal, welcome back!
You sure know how to make a return!
I have never known anyone with aids, although i have seen
Impending Death ravage my loved ones' bodies...
Kinda feel i was in the room with you, you are that vivid
a writer...

"The inside of his mouth and nose were a bright blue-green, like a black mambo snake's, like a tree in a swamp. It is very unnerving to see your best friend's insides glow-in-the dark blue-green"


Whattaya mean, god help you? What did you know about
how it was transmitted back then?
only what the so called experts tell you.........
A difficult experience, but you conveyed it in all its rawness. Glad you are back.
Abrawang - This story is a composite story of different visits to different friends with AIDS from the mid-80's until 1991. I lost MANY friends in those years. May they rest in peace! William was 1 in a million, and I hope he sees me up there in Spirit where he is now.
Thanks for this tribute. I was working as a medical center spokesperson when so much about AIDS was feared, unknown or incorrectly conveyed. I too applaud your courage and love.
This must have been heart wrenching to write. You were very brave./r
The way most people were acting about this disease when it first appeared, I had images of Medieval doctors wearing those stupid looking masks that made them look like bird people. I never lost anyone close to me from AIDS, but I knew a few folks with which I had passing acquaintance who were no longer around. It was a pretty scary time. I lived in the San Francisco Bay Area at the time.

Sorry to hear of another loss and sorry for your loss.

rated with compassion
This is a poignant post. I remember those early days when there was so much misinformation and fear. There's still a lot of work to be done, but I'm thankful we've come as far as we have.
Wren, missed you. Your post here is truly gripping, taking things personal is sometimes the best way to write. And being there for someone when they are not at their best, is tough for even the toughest of us. You are a great friend; we a richer for you being you -- wherever you are.
Wren, missed you. Your post here is truly gripping, taking things personal is sometimes the best way to write. And being there for someone when they are not at their best, is tough for even the toughest of us. You are a great friend; we a richer for you being you -- wherever you are.
I made friends with a woman who was HIV+ and her husband. They were so happily married and they had a big party for her 40th because the doctors had told her she'd never see 40. We went to see the movie "Life is Beautiful" with Roberto Benigni. It was not lost on me how much that life must have been like hers, only hers was HIV instead of the nazis. She took ill and died from pneumonia before she reached 41.
I remember these days. I was a volunteer AIDS buddy. We were pretty philosophical about it all....figuring no one really knew what the hell would happen and we thought we had a 50/50 chance of being infected. This was 1987. I still have wonderful memories though, of the dozen or so men I cared for and helped bury. Thanks for taking me back to what was a very sad but also important time.