Veil of Words

Susan Mihalic

Susan Mihalic
Birthday
August 05
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Writer & editor. Passionate about freedom of expression. Liberal, aspiring to be pointy-headed. Follow me on Twitter: @susanmihalic.

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JANUARY 1, 2010 4:48PM

Tamoxifen, Hot Flashes, and Me

Rate: 23 Flag

This year, when I’m asked about my age, I plan to say I’m 50. I’ll actually be 49 in August, but since it will take me at least a year to accustom myself to the idea of 50, I’d better start now.

The point is, I’m marching toward menopause, and hot flashes are in my future.

They’re also in my present, a side-effect of tamoxifen, the estrogen-blocking drug I began taking in April to inhibit the recurrence of breast cancer.

As cancer treatments go, tamoxifen is a breeze. A breeze that blows hot . . . like a Santa Ana or a scirocco . . . but a breeze nevertheless. Compared to the discomfort of radiation and the debilitating side-effects of chemo, a few hot flashes are nothing to complain about. (For the sake of accuracy, I will point out that tamoxifen has other potential side-effects that are much more serious than hot flashes, and also, fortunately, much more rare.)

It’s a myth that tamoxifen puts you into menopause. It simply causes menopause-like symptoms, such as hot flashes. It reduces the production of estrogen but does not stop it entirely, which means that in addition to hot flashes, I still have periods. You might say it’s the best of both worlds. When I go through actual menopause, I’ll get to experience Hot Flash Part II: Now It’s Biological.

The first time I had a flash, I thought I was spontaneously combusting. I still think that. Taking off my shirt becomes imperative. When the flashes occur at night, as they usually do, ripping off my shirt is not a problem since I am at home and the boyfriend has always enjoyed abrupt displays of semi-nudity.

In this case, however, these displays are not an invitation to anything, and most particularly they are not an invitation to touch me. When my skin is so hot you could flash-fry bacon on my abdomen, it’s best not to cuddle me or attempt an even friskier move. No, just murmur something appropriate and innocuous (“Poor baby, having another one?”) and back away slowly, avoiding eye contact. Do not touch. I repeat, do not touch.

Some hot flashes are strong enough to wake me up. One moment I’m dozing comfortably, burrowed under the covers like a normal person, and the next I feel as if someone has plugged me into an electrical socket, and I’m scrambling to get free of the sheets and blankets. After I cool down, I pull the covers back up . . . until the next flash comes along. By morning, the bedclothes are twisted and snarled, half on the bed, half on the floor. The boyfriend hasn’t been sleeping well lately. I wonder why.

A couple of months ago, when temperatures first dropped below freezing at night, we were in bed. He looked over at me, covers pulled up to his chin. “Tell me this,” he said. “Are we ever going to be able to turn the heat on again?”

Nope. Just think of the savings on the gas bill.

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Humor & gratitude . . .
I love your approach...and I'll love seeing if you can keep up the humor when Part II arrives...I sure had trouble.

Happy New Year!
Buffy, I'm curious about that myself.
A best friend of mine has been on tamoxifen for several years now (she's 59) so I can empathize with your situation.
I love your outlook--I know it can be difficult to remain positive, but you do it well!
rated for going topless!
:-)
spotted, the very first time I had a hot flash, I was in the flow of writing a critical scene. I just stripped off my shirt and kept writing. It seemed funny at the time. Little did I know I'd spent many hours writing topless. (Hell, I should have put "topless" in the title.)
Yup, I'm right there with you. If you haven't, you might want to try acupuncture. Made a difference for me.
Trust me, menopause goes on forever, and it's worse than puberty.
Beth, I may give it a try. The oncologist said the severity of the flashes will lessen over time, but I haven't reached that point yet.

Kathy . . . writing material . . . I'm trying to think of it as writing material. . . .

Deborah, thanks!
Love the humor and the great outlook you have, I think its wonderful.

-R-
LadyM, I have so much to be grateful for that it astonishes me every day. Even 50 doesn't seem so bad anymore! Thanks for reading.
Very glad to see the humor. My best friend went through the same thing with Tamoxifen and menopause, she kept stacks of cold packs in her freezer... back of the neck, on the belly, put your feet on them. A suggestion, it helped her.

I've never had breast cancer (but two of my sisters have) or hot flashes (nobody in our family gets them, go figure), but I know that any challenge is best met with humor and help from your friends. You are an inspiration, hope all goes well and gets better.
I admire your sense of positivity and send you 'cool vibrations' to keep you company.
~R
Sally, thank you. My friends have been the most amazing support network. Everything is great except for my body's sporadic imitation of the George Foreman Grill. I should get the boyfriend to slap a burger on my belly.
Fusun, I accept your cool vibrations with gratitude. Thanks for reading.
I imagine you're already in perimenopause, so your estrogen production is naturally reducing in addition to your body adjusting to symptoms mimicing menopause. like thermostats we adjust ourselves...slowly..takes a bit of time. hopefully, by the time you move into phase 2, you may have already adjusted sufficiently so you won't get such intense symptoms and you may be experiencing the worst of it. I got my fingers crossed for you. hot flashes are so WEIRD.

tell your boyfriend to snuggle up and warm his hands. it can be very stimulating.

and you can buy him silk pajamas with your energy savings! they're warm but they feel cool to the touch. ::wiggling eyebrows::
Frilly, if he's in silk pajamas, I'm afraid he'll slide right out of bed.
Being a woman is a feat in itself.
Wonderful! A humorous take on a challenging problem. You have a wonderful attitude. Strangely, this piece got me to thinking about the Women's Health Initiative (WHI), which changed the way we think about hormonal replacement therapy (HRT). Before the WHI, doctors used to prescribe HRT liberally for hot flashes (though not in women with a history of breast cancer). The WHI changed everything. Thank goodness the study was conducted. It wasn't easy. More than 160,000 women participated -- and the results were transformative. Thanks for this delightful post. Happy New Year! (Sorry to ramble. I tend to do that.)
Joan, 2009's "feats of strength" were made much easier by the support of the boyfriend, my friends, and some wonderful doctors.

Steve, I always knew that HRT wouldn't be an option for me because my mom died from a pulmonary thromboembolism. She had a history of clotting, and yet her doctor put her on HRT long after she was done with menopause. Before I started tamoxifen, the oncologist did a blood test to see whether I was a clotting risk; happily, I'm not. They took about 14 vials of blood for that test. I thought I was going to need an Oreo. Thanks for your comments--and feel free to ramble on anytime!
After reading this, I realize how lucky a lot of men have it, when all they have to worry about is their hair receeding from their scalp and relocating inside their ears LOL
Studman, I had a boss who had a mustache that was augmented by hair from his nostrils. True story. I always wanted to give him clippers.
It can be great writing material, Susan. I was contacted by a female ob-gyn on the Internet in recent months who wanted to know if I wanted to attend some seminars on menopause, and I just laughed. I shouldn't have, but I did. I figure I should get extra gold stars in the next life for having been smack in the middle of the worst of menopause when my husband was all those months in the hospital. No one tells you it goes on forever.
I love your approach to this issue too. I am also a cancer survivor and I had a relatively easy treatment and recovery, so I'm one of the lucky ones. You have a great attitude and sense of humor. Keep on being a survivor!
Kathy, I was in blissful denial about being perimenopausal, figuring I had years yet before I developed any real symptoms of menopause, and then tamoxifen brought on the Special Bonus Hot Flashes--Now with Irritability! But I'm only irritable when I feel like my head is on fire. . . .
Roger, we are lucky indeed. Thanks for your comment.
I could use a good dose of you. Beautiful and fresh and strong~
I love that you are able to maintain a wonderful sense of humor in the face of your challenges. Wishing you a HEALTHY 2010 and decades more of it to come.
Powerful and pleasant attitude. Well done.
Rated.
Part 2 is not pretty. You have a great sense of humor. I like your style.
sliding can facilitate the most interesting pastimes.
Oh good, you have a sense of humor. You'll need it! I thought I was in the middle of menopause; now I learn from Kathy that it goes on forever. Just shoot me now!
With ya, girl. No Yew tree stuff--just the natural.
When it first started happening to me it was at night in bed and , I got some mileage out of it because my spouse mistook it for passion. Then I started doing it at the grocery store and gave myself away. (No, not to the produce man.)
"Nope. Just think of the savings on the gas bill."

Good point! ~L~
I like how you weave humor and the obstacles we face into
a nice buttery croissant.
Drake
Hot flashes are well worth it, and great writing fodder. Congrats and happy and healthy New Year.
Amanda, back atcha, and thank you.

cartouche, thanks. It was a year ago today that I received the diagnosis. It’s been an incredible ride.

Thoth, thank you. I figured early on that my attitude was the only thing I really could control.

rita, it won’t be a total disaster if I get writing material out of it!

Frilly, you make an excellent point. I think the boyfriend and I need to go pajama shopping.

M.Mckenzie, I remember my mom going through it for what seemed like a decade. I’m sure it wasn’t actually that long, but I took pains not to poke the menopausal bear for most of my formative years.

jane, I need to do my research before trying anything (the internet has been my friend throughout this process). Many supplements are estrogenic (soy, lavender, tea tree), and my cancer was estrogen-receptive, but I’ll check it out. If the flashes don’t get worse, I can tough it out. If they do, I may get arrested for public nudity.

o’stephanie, it started off happening at night (why is that?), but now I’ve had a few in the daytime. Usually, in lieu of ripping my clothes off, I step outside for a minute. Usually.

Tink, but the cats agree with the boyfriend—they miss a good warm heater to lounge in front of!

2drake22, thank you, and . . . mmmm . . . butter . . .

Lea, a happy & healthy New Year to you, too! Thanks for reading.
I'm lucky. Never had much for hormones to begin with. Makes them shutting down less noticeable. Hope the ugly C stays away!
Humor and gratitude are the best attitudes to bring into life and it's challenges and you do this beautifully. I didn't now that it was a myth about Tamoxifen...thanks for clearing that up. I loved your bed time conversation with your husband.
Eloise, thanks, and I hope the ugly C stays away, too!

mary, he has been great throughout all of this. Now if we can just get through the hot flashes. . . .