jlsathre

jlsathre
Location
Illinois,
Birthday
July 30
Bio
I'm a lawyer in my past life, who got the kids through college and decided to try something different and a little more fun. A used book store sounded like a good idea, so that's where I am for now. I just hadn't counted on a recession or E-readers and am a little afraid there's going to be a third act. In the meantime, I have plenty to read and a little time to write. Not a bad way to spend a day.

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Salon.com
Editor’s Pick
JUNE 11, 2012 10:32AM

When the Words Are Gone

Rate: 42 Flag

"Yes, ma'am."

"No, ma'am."

They were his random responses to all questions.

He was not a Southern gentleman, and they were odd couplets of words to be the only ones left that he could retrieve. We couldn't remember him ever saying either one.

Speech aphasia, they told us after his stroke. Words might come back with time and therapy. We had hope.

My sister drove him from the local hospital to a larger one that had a rehabilitation unit. With no words and little to see during the 70 miles across cornfields of central Illinois, she started to sing old songs that Dad might know. She was surprised to hear that he was singing along. It seemed a good sign.

We learned later that the ability to sing is stored in a different hemisphere of the brain than the ability to speak. Singing Take Me Out to the Ballgame never translated to him asking to be taken to a game. Even though, in earlier days, those words were much more likely to be uttered than "yes, ma'am" or "no, ma'am."   

Months of therapy were successful in giving  him a little more mobility but unsuccessful in giving him more words, leaving him with his two couplets and the occasional surprise.

One occurred the day that Ben walked in. We had moved Dad to a nursing home where Ben had been his roommate while we waited for the room to open up that he and Mom were now sharing. Ben was diabetic and couldn't have sweets, but got around his sugar restrictions by roaming the halls and grabbing candy from other people's rooms. Foil wrapped chocolates on a dresser in view of the door beckoned, and Ben walked in. 

Dad saw the theft, sat up in his chair and said, clear as a bell, "I'm going to punch you in the nose." Eight words that our pacifist Dad had almost certainly never strung together in his life.

They might have come to blows if Ben hadn't been fast out of the room and Dad slow out of his chair. With his right side weakness, there were no fast movements for him.

There was only one time that he moved quickly. That was when Mom kept pressing the buttom on his Lift chair thinking it was the call button for the nurse. Dad, finding himself being quickly lifted to a standing position, frantically waved his good arm trying to get someone's attention.

He had no word for stop. 

We had little understanding of where the words to Ben came from when more useful words, like "Help" or "What's for dinner?" were lost. No other whole sentences were ever heard. "I love you," was never once uttered, in excitement of otherwise, to the wife or daughters that were his life.

He could play poker and blackjack using hand gestures to indicate when he needed new cards. He smiled at appropriate places in jokes and family stories. But responses to basic questions went unanswered. 

"What's my name Dad?" 

"Yes, ma'am."

"Do you know who I am, Dad?"

"No ma'am."

Although he did. His words were expressed in pantomime now. He smiled when I came through the door and raised his hand when I left. He stroked his cheek until I got out the electric razor if we'd gone a day without a shave. He held up his remote control when he had pushed errant buttoms that necessitated reprogramming. And when all of his underwear was somehow lost in the trek from room to communal laundry and back to dresser, he slowly pulled down the elastic waist band of his sweat pants, inch by inch, until I realized that he was going commando and needed new scivvies.

"Do you need new underwear Dad?"

He smiled as if I had just won a point for our side in a well played game of charades.

Except for the brief run in with Ben, the essence of Dad's personality seemed unaffected by his wordless world. For three years, we saw tears only once. There was little frustration and no depression that we could see. He took care of Mom by slowly pushing her wheelchair to the dining room and holding her hand as they sat in their chairs. He remained nearly wordless and changed, but somehow content and present. Always glad to see us. Never missing a meal and finishing each one as quickly as he always had. Happy to get food from the outside, to sit outdoors, take car rides, and watch golf and ballgames on TV. 

Surprising us only occassionally with words.

"What's my name, Dad?"

"No, Ma'am."

"I'm Jeanne, Dad."

And a soft, "Jeanne." 

Still there. 

When he developed an infection that was shutting down his kidneys and sent him to the hospital, the Doctor asked if we wanted extraordinary measures taken. I said "no," and asked Dad if that was right.

He squeezed my hand.

 

 

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oh, jl. i am so glad he could say your name. and forgive me for finding the punch in the nose comment a little funny.
Jane--No forgiveness needed. It was funny.
this is so touching and lovingly written.
he needs an i-pod with all his favorite oldies tunes loaded. if he can sing, let him sing at the top of his lungs! off key if necessary!
Wow... this takes me back to my visits with "Mac." He always smiled when I brought doughnuts.
Some things are said better without words!
R
Terrifying. I can't imagine anything worse than losing your words but retaining your mental functions. Your dad was (is) heroic that he kept up his spirits despite this. You tell the tale with sensitivity and good humor. R
lorianne--Thank you. The i-pod would have been a good idea.

jmac--McDonald's milk shakes or meat were Dad's favorites.

Out on a Limb--They are.

Gerald--I think there was something else lost that let him be content. I'm not sure exactly what it was, but I'm thankful for it.
My mother-in-law is going through the "mean" streak, where she won't talk to us and do nothing we say. She's fallen 3 times and really busted her head a few days ago, but she will not listen. I know she has dementia, but sometimes, I can see a spark of the old her in her eyes and I know, she's doing this on purpose. It is really a chore taking care of Alzheimer's patients.
Very touching, and harrowing. I fear aging more than I fear death. What a good daughter you are. R.
JL...I found with my mom that she came " in and out" . It is hard sometimes and as you say, other times kinda of sweet and funny.
Mom seemed very content. I have called it lost in here world of interest.
Nice, how he kept his good outlook.
Touching as heck, all in all... love your writing
*tearing up*
Sweet and so dear.
R
My dad loves McDonald's too. I take him there every chance I get. /R
Thanks to all for stopping by on this messed up day.

Scanner--My thoughts are with you. It's never easy. We had it better than most.

Deborah--I think that's what makes it hard. We see ourselves and our kids.

Ande--Content is a blessing.

tr ig--It was nice. And thank you.

Poor woman--Thank you.

nilesite--It's the simple pleasures, I guess.
For all the daughters of the world who have looked after their dads ...
and in the caring have known moments at all like these ...
the connection of those moments ...
thankfully ...
always ours ...
as they come ...
whenever they come ...
especially when ...
no longer ...
there are words ...
Thank you for these words you share ...
Jeanne, i think this word "Jeanne." comming from your dad must be one of the times your name sounded so good.I think in this times hugs are the best way of communication.No words but indeed so many..I mean I have said to my father more with my hugs than with my words..and it is healing to.Rated!!!!Best wishes for health!!!
Reminds me of my grandmother who also suffered from speech aphasia and when the dementia hit her full force.. to be honest, I had never seen her so happy as she prepared herself with dates with young men from the 1920s...

touching and poignant as always.. :)
This makes me think of my Grandma, who died from throat cancer. She also lost her ability to write as the cancer metastasized, so was left to listen to the TV and think for her last few months. Your Dad is lucky.
This is a lovely story, as have been your other posts about your dad. I enjoy reading about your family situation.
anna1--Thank you. Your words were lovely.

Stathi--It was nice when he would say my name, but even when he didn't he always knew me, which was more important.

Pensive--We were lucky never to have deal with dementia. Differences, but never dementia.

phyllis--TV was a great friend to my dad. It gave him his games and a connection to the times before the stroke.

Manhattan--Thank you. Family is easy to write about. I probably should spread my reach a bit more.
My mother also suffered from aphasia. Her personality was still there - and she used plenty of gestures. But, speaking was limited to yes & no - she usually got them right - and a slurred one, two three.

Just once, I heard her say a sentence. At dinner in the rehab center right after the stroke, she said "the soup is good". According to Dad, she once said "It's so hard" while he was bathing her and she wasn't trying to talk.

She was often frustrated - sometimes to tears - because she wanted so badly to have a conversation, not play 20 questions all day long.
Stoopid allergies has my eyes watering now.
Great write by the way....absolutely.
Jonathan--Thank you.

Mark--We were fortunate that Dad didn't get frustrated. It was some other disconnect in the brain, I assume. But one we were thankful for.

J.D.--Thanks. Sorry about those allergies.
Great job, jl! It is both fascinating and terrifying to watch a person deteriorate, mentally and physically. I have to pray for patience every time I talk to my mother who is still mentally sharp enough, but who struggles for the names of things while relating a story.
Congrats on your EP!

Lezlie
It's so hard, jl. Mom has lost so much of her vocabulary that I've become an interpreter of sorts. Most everything is "a thing" or she'll be searching for a word and say "you know" and I have to guess. Sending you my thoughts and prayers. It's a hard road.
Riveting, JL, and terribly poignant, altho the punch in the nose made me chuckle, too.

I was going to say I couldn't understand how I missed this back in March when the cover said you posted it. Of course, the cover also has this post attributed to Snarkychaser. I'd try to alert the OS storekeeper but am wondering if anybody is in fact minding the store.
My mother also developed aphasia as cancer took her around the corner...Amazingly, we had better communication then without good vocabulary than at any other time in our lives...We had a brief secret language... And I remember dancing with her in the den in that wordless place...
Oops, I checked again. They have the date wrong - March 31 - but Snarkychaser's post is underneath yours.
The human mind is such a curious thing. I am so happy for you that your dad stayed the same except for his loss of speech. I'd say there must have been so much that went unsaid, but you and your family learned how he communicated, and I think it's clear from this post that his love for you guys and his enjoyment of life came brilliantly through. Thank you for sharing this.
My not-yet-father-in-law had a stroke - not his first, but the one that would render him speechless - shortly before I met him. By the time we got to know each other, he could communicate only with his eyes and a thumbs up. Since he had always been a quiet guy, the general consensus was that he was communicating just fine. I once had a dream, though, in which we'd invented a sign language only the two of us could understand, and when I told him about it, he lit up and murmured a long rumble of nonsense syllables, gesturing urgently in accompaniment. When he died a couple of years later, his family chose to have a thumbs up carved into his headstone.
Lezlie--The brain is certainly fascinating, even when there are devastating effects. Wishes of continued good health for your mom and patience for you.

Erica--You're the one going through it now. The thoughts come your way. Hang in there. It's frustrating and you need to carve out time for yourself, but you won't regret the time spent with your mom.

Matt--Thanks. The date thing probably comes back to me. Sometimes I'll start something and not finish it, and when I finally do, that original date still shows up.

KC--There are still good times to be had and memories to be made. I'm glad you had some.

Alysa--We definitely felt fortunate to still have him around for those years.

Sarah--I love the thumbs up on the headstone. And the sign language dream is fascinating. You've got me wondering if it could work and why we didn't think of it.
Beautifully written, conveying so much feeling that enriches. I really like your father, and you for being able to make me laugh (the theft and elevator scenes were very funny) when some would never have been blinded to all humour by the sadness of what was lost. While I laughed I also got the picture of the loss of speech more clearly. Gosh, and your father pushing your mother in her wheelchair to the dining room, and holding hands there... so much tenderness. I had to pause. Life goes on, the ordinariness and specialness keenly conveyed.
trying to get the rate to stick.
This is really beautiful - and so touching. What an incredible tribute to your dad. Sounds like the kind of guy people enjoyed hanging out with -- words or no words. Thanks so much for sharing this.
This is so well told, I get the feeling that your dad was a remarkable man to adapt so well to something so basic being missing. It's wonderful that he found ways to communicate and have most of his needs met, lift chair rides aside. I'm glad he was able to know who you were and even say your name. I can see the struggles coming with my mom, she can be very childlike so I push those thoughts aside, why borrow trouble from tomorrow, it will come soon enough.
Just beautiful. My dad lost his words a few weeks before he died. In tremendous pain, bone cancer, but his face would light up at the sound of our voices. He even knew when one of us was on the phone, his breathing would escalate and a smile came to his face. The mind is a fascinating thing.

I still talk to him with questions about my mom, and I get "answers".
Sweet Jeanne girl..this is so heartrending to me. My Pops didn't suffer a stroke, but I watched his slow and methodical demise nonetheless. Diabetic, with a foot wound that would not heal, I was summoned home, emergency from NY, last flight out, and a race to the Hospital to sign the papers he was unable to, to take his leg. Incoherent, and with oh so many promises to him that no, I would not use 'extreme' measures any longer to keep him here, I could not let him lay there and die the grisly death of septic poisoning. I knew he would recognize me, my voice, even though near coma, and he did. The nurse and I worked with him long enough to tell him what was happening, and together, we signed the papers that saved his life for another 6 years. Several results of falling from the wheelchair, the daily pain of feeding himself, he was, like your Dad, nonetheless, the same, beloved man inside. In the end, what we were able to give is an eternal gift to us. You've such a lovely heart, and the shimmer of your words through the tears that welled in me tell a story of a very fine woman. It's so deeply personal, but also increasingly universal now. You sure had a cool Dad, I'm sure he is cherished, always. He obviously lives on, in you. R.
Maria--Thank you for the kind words. I think humor is what gets us through a lot of the hard times.

Ingrid--We sure enjoyed him. I'm not sure we would have survived sales trips together though.

l'Heure--Worrying ahead of time seldom accomplishes anything. Enjoy your mom now.

asia--They do stay with us, don't they.

Songbird--What a gift you gave to your dad. It is a universal story--different facts and different faces, but still fathers and daughters. Thank you so much for the nice comments.
jeanne--this is so touching. Thank you for sharing and reminding all of us--how precious a squeeze of the hand can be. You are a loving daughter.
I spoke with a woman this morning whose 16 year old had no ability to put short term memory into long. It always seems to be the disabilities that you can't imagine that hit. These are the hidden ones.
Well, you're going through it aren't you? Sounds like you've got a handle on things. Humor will take you a long way. You are in my thoughts...
Wonderful writing and memories. I have worked with many patients with aphasia and it makes everyone more aware of each moment and gesture. We can all learn something here.
This post brought tears to my eyes. So moving and sad, and loving. I cared for a patient with aphasia in CNA school, and at the very end of her life my grandmother had it too. It's incredible what a hand squeeze communicates. Take care.
aww that is very touching it just shows us how much we take for granted and not realize.....oh him saying punch in the nose halarious....