“Insanity: doing the same thing over and over again and expecting different results.”
Albert Einstein
That’s me, insane. Einstein was a genius and he said this, so I must be. I made a vow to myself to take a break from Mom, since my compassion meter was running on empty and my last visit with her left me more exhausted than usual. So I didn’t see her last Sunday, and instead took a walk in the park, practiced harmonica (I’m teaching myself) and watched TV. I was going to take today off too, since I have a bad cold, but when I called her to say I wasn’t coming, that familiar hysteria crept into her voice.
“Where are you?” she said.
“Mom?” I said.
“I can’t hear you. Where are you?”
She was holding the phone wrong, as she does sometimes, so I shouted into the phone, “Ask the nurse to help you with the phone.”
The nurse helped her.
“Where are you? Why aren’t you here?” she said.
“I have a bad cold; I don’t want to make you sick. I was going to stay home.”
“No, please come, I need you,” she said.
Dutiful fool that I am, I agreed, against my husband’s wishes who said I needed to stay home and rest. I told him I’d feel worse staying at home and wondering if she was getting worse.
I sat in GW Bridge traffic for over an hour, and made it there by the 5:00 dinner hour. I wheeled her into the day room and gave her the cup of Dunkin Donuts coffee I brought.
She took a sip. “It’s cold,” she said.
“Well, I was sitting in traffic for an hour.”
I asked her if she was feeling any better and she said, “Not really.” I rubbed her shoulders intermittently.
Then, “A very nice girl helped calm me down and gave me some potato chips.”
“What’s her name?” I said. She didn’t remember.
The dinner trays arrived. Dinner consisted of a beef and bean burrito, cut green beans, potato croquets, coffee, orange juice, a mixed fruit cup and a cup of Dolly Madison ice cream. Mom cut into the burrito.
“I don’t like this,” she said, before even taking a bite. The tortilla was a bit tough, so I cut the burrito into pieces to make it easier for her to eat.
I told her it was a burrito and that I ate a lot of them when I lived in Los Angeles with Dad. “They sold them at the school cafeteria,” I said.
She ate a few more bites. “It’s a burrito?”
“Yes.”
“I’ve never heard of it.”
Other people complained about their meals too. One woman stood up and said she had ordered chicken, not what was on her plate. Mom’s friend Lois, who sat at our table, started choking on her food and asked for water. Nobody heard her so I told one of the aides. Lois was alright after drinking the water.
After she was done, I wheeled Mom into her room and showed her the box of oatmeal cookies I brought her.
“Thank you, sweetheart,” she said. Then, “Where’s that card from Rick?”
“The Mother’s Day card,” I said.
“Yes.” It was on her side table and I gave it to her.
“Oh, thank goodness,” she said, and started reading the inside greeting. “Although I may not say it every day, know that your son loves you today and always.”
“That means so much,” she said, with a wistful half-smile on her face.
“Yes, it does,” I said.
I felt sick inside.
I’m glad that the card gives her comfort, but it hurt. It hurt that this is the “chosen” card among her Mother’s Day cards and the one that gives her comfort, despite the fact that my brother hasn’t visited her since last August and has done nothing to help her over the years, and leaves all the dirty work to me. Perhaps that makes me spiteful, but it brought me back to a childlike place, where nothing I did ever counted for much, no matter how much I did for her. It was always Rick’s small gestures that impressed her the most. It was an indication of who she loved most, at least that’s how it struck me.
Doing and doing and trying and trying, giving blood, sweat and tears to someone who will never really value me as much as she values her son. I must be insane.


Salon.com
Comments
HUGGGGGGGGGGGGG
http://open.salon.com/blog/jmac1949/2012/06/01/my_week_off_from_open_salon_-_seven_days_with_the_black_dog
It stabbed me when I read about the card, one; for you, following your journey with your mom and knowing you are handling the frontline day to day stuff.
When I came to China I told myself, I'd save some money and then move to Florida and spend my mom's last few years near her.
She died unexpectedly last year, and my younger sister was the one who did what you are doing. I got hit with the fact that I was gone when I went home after the funeral. My sister was in grief, and I had a million excuses for why I wasn't there....
...but in the end, there is no excuse. And now I have to live with not every having said good-bye, other than shouting it down the phone when she was already in a coma. I want to believe she heard me.
Peace, love and blessings to you.
I've read that many parents relate most to the child most like themselves, I'm an only so I don't know if my parents would have related to other children. Is your brother the most like your mom? Maybe you are so unlike her that you feel foreign. It doesn't sound like you light up her world so what's the point in running yourself down?
If this is harming you, you might consider going only once a week. You didn't cause her illness and it doesn't matter if she thinks she needs you or not, she has people there to take care of her needs. She can call her other children if she just wants someone to listen to her troubles. Stress is responsible for more illnesses than anything else, what you need is important.
This could go on a long time so consider pacing yourself. I'm overly pragmatic as life has been harsh so forgive this but, consider how many years she might live and how many times a week you're going to go through this and not let yourself be drained. Again, I'm being pragmatic but I learned the hard way, much of the energy I wasted on others I love was sooooo not worth it. I cheated those who gave a lot to me and also have the physical problems to remind me.
Okay, now I sound like a terrible person but I'm not one. Just a realist who often did more than was good for her. I hope you find sanity... and joy
'I’d feel worse staying at home and wondering if she was getting worse.'
Being mom to your mom must be bewildering on all kinds of levels, but you're a wonderful daughter. That's who you are.
Re. her feelings around your brother : What Matt said.
Sending the warmest wishes and support your way. Very rough to take good care of someone so vulnerable.
Keep doing the right thing. You will sleep easier for it.
End of life issues are the toughest we face with aging parents, you seem like such a sweet soul, I pray for you to have strength and wisdom and know you are loved by your family and friends. Have peace my friend.
In a way this is like being the unpopular parent in a divorced family. The one who is adored, looked up to, cherished and admired is the one who stays away, letting the other do all the unpleasant work in looking after what really matters more. That person takes on a mystique celebrity-like, unreachable, above reproach, yet who reaches and honours us with occasional tokens that become icons to symbolize their false "love".
Don't allow it to get to you, Erica. You are not insane; you are an angel.
R♥
I hope it gets better or at the very least I hope that you can arrive at some sort of acceptance. And thanks for sharing, I'm sure this was very painful to write. But you're not alone.
KEEP BREATHING!!!
best, libby
xxxx
I am not saying this as a judgment. It is a series of questions I ask myself when I find myself doing things I said I wouldn't do, because it's crazy to expect change from it. I realized at some point, though, that I can change. I can choose to do what I think is the right thing to do, drop my expectations of changing the situation and just give my love to someone not for me, not for them, necessarily, but simply because it's the most compassionate thing I can do.
Hope that helps. In the meantime, forgive your brother, it's not his fault he got more favor, apparently. The one who's responsibility that is seems to have gone to a place where not even that is her's to credit or change.
If there was justice in this world, or rational compassion, every parent would love all their children. If this were so, every child would never be made to feel less than another. If this were so, parents would never belittle or strike their children.
It's an insane world in which we live and the expectation of change in it can only come from each of us and that from within.
--r--
"Can you find it in yourself not to judge or hate or be hurt and just give her your love?"
Excuse my buddinskyism here, but you can give "your loving behavior" ... you can't DECIDE to love someone in my humble opinion (or DECIDE not to be hurt!). I believe love can not just be so simply decided to conjure up via a DECISION and especially not from advice from another. It flows from the heart spontaneously.
And to continue my buddinskyism, I don't think it is Erica's love that seems to be bottle-necked or in question here. It is mom's. Hurt feelings coincide with Erica's love for her mother because the evidence hurts that she isn't getting back what she wants. Her good will for mom sure is being tested. But the love, I don't think so. That is what makes her hurt so much (sorry Erica, I am being codependently presumptuous but I will play it out).
If Erica didn't love this woman it wouldn't sting so much to not be getting the respect and loving appreciation she deserves and feel like a second class sibllng.
"Love without honesty is sentimentality. Honesty without love is brutality." One of my favorite quotes and the word sentimentality helps me to measure judgments often made by others.
I think it would be a happier world if people would not call out people for not being SENTIMENTAL enuf, especially about other people's relationships with their parents not the judger's. To imply a person SHOULD unconditionally love their parents consistently (and I am not saying you are insisting on this dunnite..) no matter what, because they are simply their parents and seem to be owed that. Bullshit. What about the parents expected to love the children unconditionally consistently? Not as much calling out as I see it. Shame on the children who can't rise to Hallmark sentimentality on holidays or especially during the advancing years? Especially with the present circumstances with Erica's mother's condition.
Feelings are feelings, they are not right or wrong. They are emotional energy. And we can't change the dial to them at will and if we try there will be trouble. If we suppress our real emotional energy, that is when the depression and dis-ease comes. We are not being honest with ourselves and forcing what we shouldn't. We will get a backlash of guilt and shame for trying, for one thing. Since we know somewhere we are lying to ourselves.
Just a few thoughts.
I say, do the serenity prayer. And detach as much as you can when the going gets so very rough.
Best, libby
Matt, I suppose she loves me the best way she knows how, but she has often been cruel to me over the years and it's hard to always be the bigger person and forgive.
Jmac, thanks. I will.
Kate, I'm sure your Mom heard you. My condolences on your loss.
L'Heure, you don't sound like a bad person at all. What you said makes perfect sense and you are right: my brother and she are most alike and she often said. "He's just like me.". Yet where is he in her hour of need? I could write a whole blog ranting on my brother but not now. Suffice it to say, we are not on speaking terms these days. My goal is to do LESS for her, to visit less, to call less, to maintain my sanity. She often makes me feel bad about myself and brings up feelings of self loathing. Thank you again for your honest comments. They help.
Fernsy, she loves me the best way she can, but she still manages to hurt me.
Myriad, I'm not counting on heaven, LOL.
Libby, absolutely. She continues to see me as an extension of herself. When I was 12 or 13, she read my personal journal that was sitting on a chair next to my bed. She thought it was okay, because she said, "it was out in the open.". She did the same when I was an adult and she was living with me and my then boyfriend for a few months. She wrote comments and crossed words out in red pen! Well, MOm was mentally ill, so I forgave a lot and still do, but her manipulation continues, even with the Alzheimer's.
Dunniteowl, i have a lot of unresolved anger towards my brother and not sure I can forgive right now. If I wrote an extensive post about him and the rotten things he has done perhaps you would feel differently. Thank you for reading and commenting.
Fusun, you hit the nail on the head. The absent sibling does take on a kind of celebrity mystique and can do no wrong. Good point. Thank you.
PMG, I thought I had come to a place of acceptance but I guess I have not. I do accept that my mother is gravely ill and will only continue to deteriorate, but I get angry sometimes that my life is being sucked away by taking care of her, as selfish as that may sound.
Green heron, I'm sure you are right.
Jon, thanks for reading.
Is it possible that your brother can't see your Mom like this? I couldn't. I visited Mom maybe 5 times during her 1 1/2 years in the nursing home. Too many failed expectations, I guess, and grieving the loss of the parent I was never going to know. She and I were just learning to interact as adults when she fell ill. Plus Dad made it crystal clear several times that he didn't need the help I was offering, so I quit stepping up.
You are a wonderful person and your family does appreciate what you are doing for your Mom. Maybe they appreciate you because that means they don't have to do it. maybe they appreciate you because they can't do it. Either way, You are taking care of your Mom and that is what counts.
Now, go take care of yourself.
never sees the bastard. excuse the language. i have no sympathy
for kids who abandon their parents. my brother did. he never
allowed mom and dad to see their ONLY grandson. until
they were dying. the kid shows up, he's 20, he has never met
his grandma or grandpa.
now he has abandoned me and his sisters.
damn weakling of the soul...
of my two sisters, the 'favored one' went off and became a hippy.
the chubby little pleaser, my dearest friend/sis L.
stayed one town away, called 4 times a week,
came over every weekend.
finally at the end mom and dad appreciated her...
this is heartbreaking but also ...it is the way it is....
she depends on you. my parents depended on me...
luckily i was the 'baby' so i had that going for me...
Pandora, thank you for reading and commenting.
James, please, don't mince words. He is a bastard. I say it boldly. He went so low as to ask her repeatedly to mail him her Food Stamp (Medicaid) card so he get free food, despite the fact that she was losing her marbles more and more. What kind of person does that? Luckily she never sent him the card. Thanks, you validated some of my feelings, James.
Another thing people don't always realize about the selfless: even they need a break. I hope you'll be able to recover from your cold and relax as much as you can soon, guilt-free (or as much as possible).
Lezlie
From the child's point of view it hurts like hell not to be loved as well as a sibling is. From the parent's point of view, it is impossible to control how much love one has for anyone, even one's own children. Love just isn't a controllable sort of thing. It is what it is.
One can do oneself much harm by judging how much a parent loves one compared to another child in the family. On what scale does one judge such a thing?
Also, many older people are well aware that life is running out. We North Americans avoid all mention of the ending of life and how one ought to deal with it. When our time comes - mine is approaching - it is difficult to know just how one should speak to those who are close to us. Especially if we, ourself, are in denial. Europeans seldom have this problem to the degree that we do since they seldom go into denial the way we do.
Try to find love in her great need of you. It is there. Forget about "quantities" of love. You cannot see what is in her heart; only what she shows outwardly.
You know, in your own heart, how much you love her and how much you've done for her. Let that be your memory of this difficult time in your life for that earns you great honour and high self-esteem.
Best to you.....
.
skypixie, Thank you for your kind, comforting comments. You are right: there is no "how to" manual for children or parents. I do not try to quantify her love and/or appreciation for me, but I can't help but be disturbed at times when I see how ungrateful she is. It's hard to be selfless all the time and not feel anger about it.
I cannot read your mom's mind so I cannot know how it is with her. That said, let me give some personal experience. Until one makes peace with the idea that one is coming to the ending of one's life it can be a terribly frightening time. Often a person who is at that time of life is terrified of both dying and of death (two VERY different things).
Yet, in our culture, they are not allowed to talk of their fears. Any mention of it, by them, elicits a response of, "Don't talk about it, you're not going to die yet." We even say words to that effect when they are clearly on their death-bed and not about to make it through the night! We think that we are "comforting them" and "easing their mind". We are not. We are isolating them inside their own fears.
That our society does not allow for this, much needed, discussion to take place, does NOT make them not want to have it - NEED to have it. But they can't. Often (this is the personal experience part) the very person we most trust and want to talk to about it is the one we feel we must try the hardest to hold back from. We can get very snarky and cutting with that person so as to keep them at arms length so we don't start blathering away about our fears. We think that it would be wrong to "lay that burden on them."
As said already, I don't know what is in your mom's mind. I just want to mention to you that there may be a reason that you don't know about for her to act that way.
Keep yer pekker up kid...... you'll do OK.
.
Ingrid, thank you.
time for a strawberry sundae--join me?
Elise, excellent point. I never considered that.
Sirenita, how awful that she said that in front of you. Yes, you were in the same situation I am in now. No one wanted to deal with and still don't want to deal with Mom and her illness, so it's all on me. I doubt my brother will even attend her burial.
what the doctors tell us? her brain is mush?
what about her soul?
is it..uh..accurate?
or..can bodily maladies deform you?
well
luckily my alzheimer dad loved me true.
not so much the other siblings, poor them.ah. what to think..
Give yourself a break Erica, you're being very hard on yourself under all this. I look at your response and remind you that this is also YOUR hour of need and you need a mother that wants you, that is glad you are her child, that you matter to. No matter what your relationship was your mother is failing and this is your last chance to have her want you, appreciate the woman you are. I was there with my dad, I hoped that he would finally give me what I needed. I didn't get it and I was completely unprepared and repeated the same painful pattern elsewhere. Now I struggle to deal with it and remind myself daily that what he couldn't give was never about me.
You're in a very complex situation, society allows you to be angry with your brother for being selfish and not caring about the needs of his family. Society has told you you're not allowed to be angry with a mother, their failings are to be excused, the childs failings are not. Especially since she didn't burn you with cigarettes and let men rape you. Anything less than brutal abuse is expected to be allowed by the child, if not, you are labeled ungrateful for having your own needs. It leaves you having to verify that you're a good person because being selfless and caring about her needs isn't what is (or was) encouraged, appreciated or rewarded. To make it more complex you love your mother and care about her well being. Even with similarities none of us can understand how you feel or know all that has passed, as can easily be seen. We all look at things based on our own experiences, this is something happening to you.
The strength of the selfless person is not limitless, they need care. I too am often the "dutiful fool" and am guilty of doing the right thing for another instead of myself, it can be used against me too. I'm glad you have a husband concerned about your needs who is there for you. You are lovable and you are loved.
Please be gentle with yourself as you walk through this time. You're in my thoughts.
Maybe it's written in our genetic code?
Either way, it hurt you, and I'm sorry for it.
perhaps your husband was right. Maybe next time, perhaps find a gentle way to share with your mother you require some rest or you won't be able to give her your best. You deserve it, as does every loving caregiver.
R
((((((((((Erika)))))))))
Love...~Cyn~
xxo
OOO Big Hug!!!!!!!!!!!!
"Insanity: doing the same thing over and over again but expecting different results."
I've seen this quote attributed to Albert Einstein, Rita Mae Brown, and an Alcoholics Anonymous publication. Where ever it came from, I think it's interesting that this definition of insanity could actually apply to many writers.
As writers, we are constantly sending out work and getting rejections. Then we turn right back around and send that work out again and hope for a different response. Does that make us optimistic? Persistent? Confident in our work? Well, according to the above quote, it could actually make us insane. Looking for cheapest auto insurance in Florida?