Apparently according to the foodie gurus who calculate what's in and what's out, a disease I live with everyday is still in for 2011. Thankfully Celiac disease is still trending up and even Subway is testing a gluten free sandwich in Texas for the next few months.
Three million people in the United States alone suffer every day yet millions more have convinced themselves that it's cool to go gluten free. Believe me they have no idea what it's really like to live like this everyday. It's really out believe me!
A few kind people on Open Salon like Heidibeth and Oryoki Bowl have given me gluten free recipes. If you are gluten intolerant you need to have patience, imagination and be prepared to pay through the nose for stuff. Sick of paying outrageous prices for gluten free pre-made food and pocketing a couple of recipes from Heidibeth, I make the pilgrimage to Whole Foods.
We enter the store and the scenario unfolds.
I buy two loaves of Udi's Gluten Free white slice bread at $5.99 each. An actual slice is no bigger than the palm of your hand but I have discussed that before so let's move on.

Last week I bought some gluten free all purpose baking flour at $5.99 for 22 ounces and seeing you need almost 2 cups to make banana bread we all know how far that is going to go. Flour purchased and ready to bake, I read the recipe and come to a complete screeching halt.
I see that they are suckering me into buying something else before I can bake. It is called Xanthan Gum and made by the same company called Bob's Red Mill.
I tell you by the 20 kinds of pricey flour Bob has on the market today he must own that Red Mill right now. If not he is pretty damn close. One more purchase from me and he is going to be time sharing that sucker out.

I stand in front of the vast flour empire at Whole Foods that Bob built and do not have my glasses on. Can you smell trouble right now? There stands in front of me the many choices of Bob’s finest and I cannot read the titles.
Do I really want to dig in my purse to find them?
Of course not!
Having been bred to be stubborn I stand there and feel my way through the packages like reading Braille. I figure if I can spot the letter “X” I am on my way but I see no “X” just Bob's picture with a golf hat on. Steve finds me and offers to help and asks what I am looking for.
“It starts with an 'X'. Just find anything with the letter 'X' and we're good”, I say.
He looks and says he does not see anything of the sort and he has his glasses on. I start the “not yet” serious whine, which I proudly got an “A” in at school.
“It has to be here because it is made by Bob and they had it at the Berkeley Bowl with the flour", I mumble.
"This isn't the Berkeley Bowl", Steve says.
"I know that", I whine.
"But it has to be here! How many things start with the letter X?"
He looks a little farther down the row and sees it tucked next to the baking powder, so now I have a good idea what this stuff is. I look at the price and I scream so loudly I think I knocked over the man next to me with the sheer volume.
"It's $11.99?
"ELEVEN NINETY NINE?
"You have to be out of your mind!"
"Eight ounces for $11.99??"
We are now cruising down into serious whine mode.

Steve stands there and talks me through the rationalization of it all. How much am I going to need of this stuff to bake? I tell him with tears in my eyes that I will only need 1 teaspoon. He then assures me that it is a good deal, it will last a long time and do I really have any choice? I nod my head and now know how Bob has financed those expensive golf hats he has perched on his head. You think with all this money that he might have been able to afford hair plugs?
We proceed to the check out and a man who looks just like the lead singer from the band The Smashing Pumpkins is mumbling something to me. I smiled and looked at him and said, “Excuse me?"
He glares at me and tells me to take my items out of the basket like it is completely out of his job description. I take the 7 items that are costing me $33.00 out and he starts to whine to a fellow cashier that he is all alone on the Express checkout.
At this point I really want to say something but I "zip it". Amazingly enough I "zip" it out the door and wait until I am least 200 feet from the store. I look at Steve and in a full blown over the top whine say,
"Do you think "Billy Corgan" could have at least cracked a smile?"
And then I proceed to yammer on and on that if people do not like people then they should not get into the retail field. Of course it does not stop there and I proceed to tell the story that I have probably told a million times before of how The Ottawa Citizen named me as one of the five people in the city of Ottawa that provided top service when I had my store.
I believe the words the newspaper used were " bends-over-backwards service" which is really what I wanted to give Bob of Bob's Red Mill for their prices and the Billy Corgan look a like who gave me about 13 cents worth of service for my $33.00 bill. Isn't bad service out?
After all this I still have not baked anything yet. I figure I have lots of time to decide what recipe is in before I find my disease is on the out list. Bob had better watch those flour prices or he might be on his way out.
Because as Heidi Klum says,
"You're either in or you're out!" - trendy disease or not.
Text and Images Linda Seccaspina 2011


Salon.com
Comments
TJ rocks but I hate their brown rice bread.
Maybe you should start making gluten free bread? I miss Berkeley Bowl. You should write a whole post about the social culture of the Bowl for folks around the world who have never been there. It could be really funny.
Margaret.. I got the Bisquick only mine is made by Arrowhead Foods..
6.99 for one box. Betty Crocker had a new line of gluten free mixes at Target and now it's gone. NO volume.. it's out.
Yea the X gum is necessary.. but I got me a bag now.:)
The Bowl.. I had to laugh.. man granola r us hahaha.
I am kidding.. I love that place.
Leon.. I am okay eating out now.. At the beginning not so much.
Matt.. I think I had some form of it for part of my life but had no idea. After menopause it blew in like a summer storm and never left.
Scanner.. it is easy once you put your mind to it and say NO..:)
Does he not remind you of Captain Kangaroo??:)
Bananas and almonds huh. It is fairly obvious that you need to live next door to me..:) I do have bananas on toast in the morning with peanut butter,
rated with love
If I would have had staff like that when I had my store they would have been gone the first day.
The Bowl has a new store almost twice the size as the first.:)
I know some people just love bread (I am one of them). But I was just wondering if you can eat root vegetables (ethnic market, probably less expensive than WF), their dense texture might engage the starch craving that bread satisfies.
It seems it really depends on where you live--my city is definitely one of those where gf is In. My local pizza place delivers gf-pizza, for example. This "trend" will have no choice but to grow to other areas, as people develop more allergies, sicknesses, etc. to what passes for "food" in our modern world.
Of course, unlike most people I have never been very fond of bread. (makes me think I've always been gluten sensitive) Anyway, I just put all my sandwich fixin's on a corn tortilla. Pasta however had always been my #1 food source, so it has been hard to only eat the ultra-starchy gf version, and not be able to order it at restaurants. But the more you eat something (like brown rice pasta), the more you get used to it so it doesn't bother me as much anymore.
I realize most of what I'm saying won't be much of a help to you right now, but just wanted you to know I understand your journey--and it partly a long process of letting go, trial & error and learning the cost-cutting sources/brands available in your area.
I hear Amazon has some of the flour mixes available cheaper too, but haven't personally looked into it because of the stores I have available here.
I love turnip and to get 4 tiny baseball sized ones is like 7.50.
I do sweet potatoes but should try other things.. Smart idea
Sarah... yup a veggie corn taco is great. I am sorry your niece has gotten it so yong.:(
You want to know someone famous that promotes a flour free world?
Gwyneth Paltrow.
I rest my case.
Celiacs used to hide in the dark almost. Not really but no one knew what they had and it is still hard to detect. They used to say IBS.. Chrohns etc.. In the last two years they have gone leaps and bounds.. but we still have bad service.:0
XJS.. I am coming after yer cat :)
I gave up on gf recipes pretty quick, and now use regular recipes and just replace flour with a baking mix. I don't make bread though....
I will look for a bread machine. I do make my own ice cream though.
Lezlie.. if they cannot give prescriptions at decent prices they sure as heck are not going to look at celiacs haha :) Good thoughts though.
Amazon has tons of stuff now and that is probably where I will look too now.
I had no idea that Pamelas did flour too. I thought she just did cookies..:) Trader Joe's also haas a baking mix that is supposed to be for pancakes but can be subbed as a baking mix.
This disease is getting worse by the day thanks to what Monsanto is putting into the grains. My BF just got it. I bumped into a man that has it so bad he has to wear gloves. Makeup can have gluten too.
Tinkyada has just come out with a gluten free non mushy pasta.. Really good.. but yeah the starch scares me.
Thank you so much for your advice.
Chuck.. more and more people are getting this every darn day. What the heck are they putting in our food?
Catherine.. tell me you got video of this encounter.. I would have paid to watch that..:)
Just Cathy.. TJ.. is my alma matter.. It is nothing but the best
...but you are talking smack about an Oregonian, good ol' Bob.... : )
There is no excuse for lousy service - when it happens to me, I ask to speak to the manager. The negative comments about WF service should be a warning - especially when TJ's cost less and shopping is a pleasure.
Only the rich get to be healthy it seems...
I am glad he treats his employees right though.
Sheila.. I will post the whole picture of the banner this week.
Catherine. Dave R has asked me to some poetry.. (beating the dead horse.:) So it hink I will use the photo
Diary.. I am fine with recipes.. there is a site called Gluten Free Goddess.. it's just the ingredients that are killing me.
Alysa.. ma cher.. twas your blog about the King Cake that got me hahaha
Soap .. once in awhile there is a sale but it is not much.
Glutino (yes that is their name) has a sale on gluten free cereal or the mock Ritz crackers..
I am impressed.:)
angel kisses.. you can get brown rice bread at Trader Joes for 3.99 but it is much like a brick in size and feel. If I have to eat this well.. ya know..:)
I am glad it is a fad only in the fact that when I do have money I can get much better product that doesn't hurt me.
I am afraid this to will pass and we will be back to finding what we can. There is a almond bread out there that toasted is edible :)
Here's a great recipe for gluten free, and raw, and good for you!
equal parts (measured dry)
mixed raw nuts: almonds, pecans, hazelnuts
mixed dried fruit: figs, cherries, berries, maybe a date or two
Soak these in water for a few hours, until plump. Drain, feed juicy nuts and fruits, alternating, through a grinding juicer/nut butter maker (no sieve) or an S-blade blender. Makes a soft and fluffy delicious paste. At this point, add chocolate chips (as needed) and form into little balls. Roll balls into toasted rolled oats or coconut. Eat. Or let air dry. Can press the dough into a pie shape and bake a little, use as a crust. YUM! I call them the Uncookies.
http://www.inclusilife.com/ A business started by a young mom in Oregon whose son has celiac disease. As an aside--she contacted me out of the blue when she first started her business, about 6 years ago, and hired me to do her logo & calligraphy. I've never tried the product, but give her a holler and mention my name :) (r)
♥
Ian.. I found the perfect pasta but the soy.. .. why is it everything I like is bad for me.
Oryoki... This is almost like the recipe for Larabars which I love.
If any of you have not tried the Larabars, well they have saved me I swear. Oryoki.. you are so lucky you can restrain yourself. It is not easy after decades of bulimia, anorexia etc..
When you stop and go clean... well it is not pretty
Take care of yourself, Linda.
We love you BOB but your prices are ahhh expensive.
I will check that site out.. HUGGGGGGG
Fusun. PLEASE DO NOT STOP THE RECIPES. I live through the food challenges and have grilled cheese myself out this week on gluten free bread..:) but please do not stop..
Mime.. Did they leave any gluten free brownies sitting around and did you taste sand??:)
BULK BARN :)
Cranky.. I love it too.. but there are some unfriendly people working there
There are many great reasons to go gluten free for a while, not just Celiac disease. It turns out, one can acquire Celiac later in life (this is new research), it was previously believed to only be present at birth. It is in the autoimmune category and correlates often enough with acquired Hashimoto's thyroiditis and lactose intolerance. Probably has more to do with the utter crap we have done to our food supply, genetically, the how we farm, then how we process than it has to do with wheat itself. Unfortunately, the SAD (and probably the SCD) is full of wheat, dairy and sugar at every turn. It only changes when the people demand a change.
As to Bob's, glad they provide stuff, but they charge a fortune.
I just discovered crepes over christmas and now have to find a way to make these delicious and gluten free. Not because I am gluten intolerant, but because life is better with less wheat in it and my patients need ideas. So, Ms. Linda, I hear quinoa flour is good for pancakes. Lets see who can come up with delicious gluten free crepes. (totally ok with butter here).
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http://sprouts.com/content.php?frameSrc=/food/
Maybe they'll make their way to your neck of the woods, but maybe..just maybe..they would have new brands or information on their website. I really have no idea about prices.
I hope things get easier for you
But Linda, yet another serious subject that you've managed to lighten with your wonderful sense of humour whilst not losing the fabric of the message.
Satori.. Sprouts is actually a UK chain trying to compete with Trader Joe's. Not in this area yet.. Too many TJ's :)
Sheba.. It was me that ended up figuring it out. Doctors are still baffled.
A Walrond.. Wow.. I never heard of that. HUGGGGGG
Xenonlit.. Welcome to the bay area hahaha
Little Kate.. you just do the best you can..
Bellwether.. If you talk to Bob.. say Im sorry but I was angry when I wrote this hahaha