DeliaBlack's Blog

Don't be afraid of Johnny Cash. He only flips off bad folks.
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NOVEMBER 2, 2009 10:58AM

I Heard the News Today, Oh Boy!

Rate: 51 Flag

It was not today, but Thursday over a week ago that I woke up in the morning and walked past my grandmother's room.

"Take me to the hospital.  I wanna go now, this way, " she said, asking to go in her robe and slippers.

Granny is normally a hospital avoidance expert, though these last few years have left her as a patient more than the rest of her life  combined.  I dutifully took her to the emergency room, telling my mom to ask her sister not to call while I was out there. 

"I'll be busy, so I can't answer the phone every few minutes.  Tell her I'll call her."

I was there about an hour when my mom's sister and brother-in-law showed up.  Granny has had trouble with blood clots, and her legs have been swollen for weeks.    The staff had moved us right away into a little room in the ER.  They finally got around to taking her up for a CT scan in order to check and make sure that the blood clots hadn't gotten to her lungs. 

My aunt and uncle and I waited. Finally, someone came down and said that my grandma's wristband was gone. 

"She's been sittin' up there in the hallway, and they didn't know who she was," the staff member said.  We waited longer.  Finally, an ER doctor came down.  Her lungs looked clear of clots as far as they could see, but the clots in her legs had worsened.  There were also "spots on her liver."  It would be cancer. It would have metastasized there from somewhere else, probably her colon, which sends blood to the liver.

Right now, they had to worry that a clot wouldn't break off and kill her.  They were going to put a filter in her abdomen to catch clots, then get to the spots later.

Cancer.  We went to a waiting room in a different section of the hospital as they put in the filter, and I kept weighing the word.  Everything seemed different, vaguely menacing in a way I couldn't grasp.  The air seemed charged and even the chirpily bland anchors we watched on the waiting room TV seemed part of a conspiracy.  What kind of word casts such a spell?

This Friday we got the official report back.  She has stage four cancer.  It probably started in the pancreas. Half her liver is eaten up with it.  Though some in the family (mostly men) didn't know what she should be told, I tried to prepare her.  I told her they were thinking that she probably had it.

"You tell 'em that no one in my family has cancer.  You tell 'em for me," she said.

Yesterday, we had a family meeting with an oncologist.  He looked about my age and stooped down to hold her hand, talking loudly as he told us all that chemotherapy usually only lengthens the life for a few months in an active patient with pancreatic cancer.  It is inadvisable for a person in her condition.

(They let Granny out of the hospital while they were waiting for the biopsy results, but I had to take her back to the emergency room last Wednesday. The bottoms of her feet were purple, because the clots were worsening and cutting off circulation.)

The oncologist even said that her feet might autoamputate.  He said they would only do chemotherapy if she insisted, but it would leave her feet open to even more wounds.  My already small, tired Granny seemed to shrink even more with worry as she squinted to understand him.

"Do you think you would want chemotherapy-like treatment, or do you want us to just make you comfortable?" he spoke slowly, loudly down to her.

"Yeah, I wanna be comfortable," she said.

I pointed out that she didn't know he was really asking if she wanted treatment at all or not.  She just thought he was asking about pain.  He tried to explain to her again.

So, they are going to release her to hospice care at home.  The doctor told the family that in her condition, he doesn't think it will be more than a month until she dies.  I don't know how much we will have to do at home.  I have to get the room ready.  Family members have flown in and another is coming.  I need to call to find a church for a memorial service.  I wonder what we will do about her bathroom needs, since she can't walk.  Her legs are purpling, too, and one foot  has a huge blister that leaked today and will probably turn into a wound.  Gangrene has been mentioned.  This is gross, I know, but I am not sure how this will be handled.  They claim that there is such good pain management.  The oncologist said that when cancer patients were surveyed, they feared pain more than death.  I don't doubt it.  It is what I fear.

As the family gathered in a waiting room last night to discuss the oncologist's visit-- saying they weren't sure what Granny understood and what she should be told--I decided to make my way back to her.  I asked if she knew what her doctor said.  I tried to tell her gently but clearly that they were saying she wouldn't live through this and that treatment wouldn't save her, but only make her legs more prone to wounds.

"Well, I'm 91.  That's a long time, honey," she said.  "You know I wanna be cremated."

"Yes," I said.

"And Susie said that you can just go up there at night and dig a hole and--you know--place the--and then plant a bush over it and them folks at Serene Gardens won't know," she said.  (She has said she wants the ashes buried, not just spread over the grave.)

"Yes," I said.  "You know, you'll see Bob" (my grandpa who died before I was born) "and who else....your parents and Pearl and Golden and---"

She began to name her siblings.  "and Jewell and Gervais....." (They named all the girls after gems except one. My grandma's middle name is Opal).

I mentioned the names of her deceased family members, because I hoped she'd find some comfort.  I know she has long been afraid of hospitals.  I know that she --a woman who never takes pain medicine--finally broke down crying a few days back from the pain in her legs, frantically asking somebody to help her.  I know that I still think of my own father and how I so wish to see him.  Sometimes it is hard to even stand.

But you never know where Granny's mind is.  After we named some of her lost family members, she finally admitted, "But I'm not a 'studyin' them right now.  I'm just hoping my bowels'll move."

Oh, the mad, screaming roller coaster of life.  Where will it take us next?

 

 

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I'm so sad. I hate cancer.
I have no idea where the mad rollercoaster of life goes, but your granny is lucky to have such support. Take care.
Forty years ago, when I was a kid, I figured I'd never have to worry about getting cancer because by the time I was older they'd have a cure. Still waiting, guys.
This made me sad.
Cancer: what kind of word casts such a spell? Indeed.
Everybodys worst fear, I'm glad she lived to 91.
Thanks for the kind words, guys. I hope they find a cure before I have to worry. We'll see.
Reading this saddens me. I send my best thoughts and prayers.
Heartbreaking! I'll never be able to listen to this song the same way again. I think at 91 you're Grandmother is one smart lady!
R~
Your grandmother seems brave and good. I've no doubt that you are a huge blessing to her. I'll keep the two of you in my prayers.
Visiting hospice nurses were a great help and comfort when my dad was dying. I hope they can do the same for you and your family. My thoughts are with you.
May she be without sufferig and comforted by you and others. So sorry for this difficult time.
Wishing you all strength for wherever the roller coaster takes you next.
"And in the end the love you take is equal to the love you make."

Granny will be just fine...
I am so sorry you are going through this Delia. She is lucky to have you. We home cared my grandmother on her last two weeks. You need to find a homecare nurse. I hope you have access to services like that. It will ease the load on both of you greatly.

Namaste.
My daughter's fiance is fading from his cancer as well and now hospice visits twice a week. They really do a marvelous job with pain control, will help you manage getting the house ready for her, arranging special beside commodes or whatever you need.
May she slip peacefully over the bridge and run, greeting her jeweled siblings.
I'm so sorry Delia, it's hard to lose a family member no matter what age.
(and hospice nurses are amazing for many reasons- but especially what they can do for pain relief)
Oh boy is right-what terrible news.
Your Granny is loved and not alone. You and your family are a true blessing.
Sending you love.
so sad. I hope you are okay and Granny finds peace.
I had the privilege of escorting two men through their last months recently. I hope I don't sound cold by saying I'm not sad, though I feel for you and your family. The flesh holds up only so long. Then it's time. She sounds like a wonderful woman. Her remaining hours will be with you always. Cherish. What is happening is sacred. I'm glad there is time for folks to come by and pay respects while she can hear them.

You are mistaken about the relative quality of our posts, but I am honored and touched by your mentioning mine. Be well.
I'll take your hand
and greet the day.
You will not be alone.

~~~~~~~~~~~~~~~~

Peace and love, Delia.
This brought back all the promises I made my parents as they lay dying.

Looking back, I think those leaving boss us around to keep our minds busy. Bless grandma. I'm glad you had her for so long.
You and she are in my thoughts. Thank you for sharing this.
It takes us all to a place where we have gotten back to seeing, experiencing and sharing death in life. Grandma has known death in her lifetime, unfortunately it's consequences have changed for the worse over 50 years. Prolonging a moment of dignified passing, which could be followed by an uplifting burial or sprinkling of ashes, has been replaced by untoward self flagellation and pity, attention grabbing at the grave, and who gave the best flowers exhibitions - clearly a grave error on the part of the living. Godspeed Grandmother, Mother, Daughter, and Wife. I hope your passing isn't tarred by unnecessary squabbling, guilty tears, or self aggrandizement by those left behind to mourn the place you have left behind. Love to those you loved and who loved you. I hope they know how to carry and share your memory, for your sake.
Hospice care is a truly a blessing - not only for the patient, but for the family as well. Hospice organizations are a wealth of knowledge, experience, resources, and compassion. Don't be afraid to ask them the questions that keep you awake at night - they've seen a lot of things and will work right alongside your family to ensure that your grandmother is comfortable and well-cared for. She will be treated with dignity, kindness, and respect in her final days , which I hope will be a great comfort to all of you.
I hate this terrible, evil disease! Your grandmother is lucky to have you and those she loves around her. My thoughts are with you.
Mary, I can't tell you how bad this makes me feel for you and your family. I know your Granny was a cantankerous girl her whole life. I pray for strength for you during all of this. It will be difficult, but Granny is lucky to have you there for her. I know you get things done when push comes to shove. At ninety-one Granny has had a full life and it sounds like she knows it. That won't make her passing any less sad. I just feel bad that she will have to endure so much pain. Hopefully the meds will make her as comfortable as possible for her final days.
I know you get tired of being the person who thinks of things and takes care. Your family is so lucky to have you.
The deterioration of our lives (and that this process goes on for so long) remains a frustrating puzzle to me. I hope your granny's bowels move and that when she moves on, she does so in peace. O'Really Good.
I'm sorry Delia, very much so. She has a good point about the being 91 thing though. She's seen a lot here on earth. Our paternal Grandfather was born in 1899 and lived to be 95; no cancer, no alzheimers. Just worn out. He crossed from Ohio to southern Kansas in like 1904 in a covered wagon. Married my Grandma (who proceeded him in death a few years earlier) sometime around the end of WWI. The roaring 20's, the great depression, WWII, four children, many grandchildren and great and great great grandchildren. When he was very old, mostly after Grandma had died and he was lonely I would go visit and ask him to tell me stories of those old days. That made him happy I think. And now I'm wiping tears from my face.
She sounds feisty. Maybe just be an ear for her. She'll be reflecting on her life after the news she has been given.
Yes, life is like a really wild roller coaster, we hang on for the ride, till the end....

Rated.
91 is a good long life. Why make her suffer? Hang out with her, listen to her stories, and love her till the end. Take care.
Delia, I'm so sorry. I 'm so happy that your Granny has you. You are being there for her at a time when it is so hard on everybody. You are remembering to tell her all the true things that give comfort. I pray that she will get good pain management. I am thinking of you and praying that you will seek and get the support you need. I hope writing this goes some small way towards that end.
Thanks again for all the heartfelt wishes! It now looks like she can go to an inpatient hospice. They said she would need someone with her 24 hours a day, and we couldn't provide that. Medicare is *supposed* to pay for it all.
I am still sad about her death, but at least we will be able to spend more time talking to her instead of worrying about wounds, etc.
That's good that she can go in house so to speak. They can handle the delicate issues without any negativity. Not that you would but that your Grandma may feel more comfortable. Now that the hospice has become involved in my moms care we can rest in the fact that her pain will be less, she won't need to process food anymore and hopefully , for her, she can find peace soon. I wish the same for your grandma. You are a wonderful granddaughter.
So sorry to hear it, Delia. I know you are fond of your grandmother.
While you're listening to your grandmother, be sure to tape it or write it down as soon as you can -- I regret not asking mine so many questions I have now.

Thank god she has you and a supportive family around her.
oh,s weetheart, this is beautifully written. im' so sorry about your grandmother, sweetheart. and about how much you miss your father and miss him more at a time like this. i'm so happy that you will have hospice. they made richard's last months bearable and painfree. i can't even imagine how much pain your grandma is in and how much emotional pain you are in. i adore you, love. i'm sending you healing light and prayers and everytihng that is good in the universe and LOVE LOVE LOVE.
Best wishes to you at a hard time for all concerned. Blessings.
This experience, which started with knowing a grandma, will always be yours. You and she are in my thoughts.
I'm so sorry. There's no easy way to lose a loved one. You're lucky to have had your wonderful grandma for such a long time. Bless her heart, 91. You are right, pain is more frightening than death, which we shouldn't be scared of. I think when the time comes, it's not really scary. I hope she passes in comfort, aware of her family, pain under control, and bowels moving as needed.
Delia,

I am so thankful you are going to have inpatient hospice. My heart bursts for you and your family (I choked up reading this) and it gleams thinking of all the love she has around her. Thank you for reaching your heart out to us.
This is a great sad post. Good hospice usually takes care of everything you're worried about. You just have to keep her focused on talking about your family, and letting you know if she's in pain.
Delia: It's obvious there's much good that you've gleaned from helping your grandmother and your family. Not the least of that good is your heartfelt and moving and matter-of-fact post. Odd though it may seem, I envy you the chance you've been given to say goodbye and contribute so practically to what what I would call a death worthy of the woman you describe.
My Dad has a mass growing in his stomach. They do not know if it's benign or cancerous because he is not a candidate for surgery or treatment. His is in my home. I hover over every meal, watching as his appetite decreases. My heart understands your words. It's all just so sad. Give your granny a hug for me. Just say it's from a friend who understands.
I am touched deeply. A wonderful piece! Congrats on the EP!!
Good luck and best wishes in these coming weeks. This is an exceptional and very moving post. My thoughts are with you.
I read your thoughtful comment to one of Thoth's posts and had to read your blog. I'm glad I did.
I hope your granny is old and that she lived a long life full of joy and love. It is hard to embrace life when someone we love is dying, but that's the best we can do.