cancerdancer

thoughts on living with cancer

cancerdancer

cancerdancer
Location
Midwest, USA
Birthday
May 20
Bio
At the midpoint of the journey's life I found myself lost in a dark forest with no straight path I could see anywhere. M.L. Rosenthal's translation of Dante's La Commedia Divina Diagnosed with ovarian and bladder cancers, I received an entirely new subject for writing and a challenge to intensify the second half of my life.

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FEBRUARY 23, 2012 10:13PM

Don’t Scare the Newbie

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            The first short Friday of chemo did not begin auspiciously. Linda, the chemo nurse that day, had trouble accessing my vein (each failure hurt) and another patient’s port. Finally another nurse put the needle into the vein. Linda dropped some fluids on the floor. Even nurses had bad days, I realized. This was just life in the infusion room.

            When I’d told a friend that I’d be spending the day in the infusion room,  she said it sounded like a place out of Star Trek. I’d previously thought of infusion in terms of aromatherapy or tea; the notion that chemo was being infused into my body was not pleasant.

The Spanish idiom for headache is “dolor en la cabeza.” In that language, one doesn’t have a headache; one has “sadness in the head.” I had both the English and the Spanish versions of the malady. The drugs hit me hard, so my head ached, and it was filled with deep sadness for the difficult paths we in the infusion room were taking.

            My real problems came with the afternoon shift of patients, an extroverted bunch of recidivists. (Two can be a bunch if they’re extroverts and talking too much.) They were swapping notes, not quietly, and I realized they’d been dealing with this six years, eight years, on third and fourth rounds, happy for a three-year spell without chemo. It hit me that this could be my life, that my doctor could give me hope, but not guarantees. I finally realized what he’d been saying all along—I would be in remission after chemo. He never said I’d be cured.

Linda saw me go white and asked if I was okay; I said I had to pee—any lie to get away from the cheerful comparing of notes. While in the bathroom I stared at the artwork, such as it was. I faced a crayon sketch of an annoyed heron with a partially swallowed frog in its throat, little frog legs and hands grasping the heron’s throat to prevent its being completely swallowed. Underneath were the words “Never Give Up!” How are those words meant to be applied? I wondered, perversely refusing simply to laugh and move on. Was I the frog, fighting for my life, trying not to be swallowed up by cancer-heron? Or was I the heron, determined to get and keep this nasty chemo-frog down? Was I to regard myself as an insignificant amphibian, about to be preyed upon? Or was the heron a symbol for my cancer, determined to make an end of me? I was overthinking the drawing, but there wasn’t much to occupy my fears in that small space.

Another crayon of a lion bore the words I later learned were by visual artist and writer Mary Anne Radmacher: “Courage doesn’t always roar. Sometimes courage is the quiet voice at the end of the day saying, ‘I will try again tomorrow.’” Later, when I found the entire quotation, I regretted the omission of the first line—Some days there aren’t any trumpets, just lots of dragons.

After I returned to my recliner and my current chatty dragons, Linda made the connection between the still ongoing conversation and my face. I could see how hard it was for her—she couldn’t shush them and tell them not to scare the newbie. She pulled the curtain around my chair and gave me a pep talk. She brought me ginger ale. She got me out of there asap and hugged me and reminded me that every body, every cancer is different.

When my friend Ben called in the midst of my post-chemo manic phase that evening, he asked, “What can I do for you? Do you need anything?”

“Nothing tangible,” I said.

“What intangible do you need?” he persisted.

“Courage,” I said, my voice breaking. “I need courage.”

“What did the Cowardly Lion get when he went to see the Wizard of Oz?”.

“I don’t remember.”

“Well, I am opening my hands and sending you courage,” he said.

The Wizard had given the lion a medal, I recalled later that evening. I settled for a medal I had and could find—the Veterans of Foreign Wars medal I’d received for winning a Voice of Democracy writing contest in high school. I blessed my pack rat tendencies and placed the medal, with its royal blue grosgrain ribbon, on the dining room table, so that I could see every time I ate—my own desperately needed talisman of courage.

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Linda sounds really cool.
Hope your cabeza feels mejor today, cancerdancer ~
Wow, sometimes it takes something tangible, a medal we can touch, pick up, look at, to give us courage. And when you think about just getting through this process, you hear veterans talking about their next bout with their opponent. It's enough to just be like the frog and keep the heron's maw from engulfing you. You give it what you got in you that day, and save the rest for another fight on another day.
My heart goes out to you. Courage doesn’t always roar. Sometimes courage is the quiet voice at the end of the day saying, ‘I will try again tomorrow.’ That's a beautiful quote, and I wish you lots of courage.
This sounds like such an ordeal--yet there you are, sharing it with the world and bravely putting one foot in front of the other, making acute social observations and cracking jokes as you go. (Really? A drawing of a heron swallowing a frog? OMG.) I love this post. I had breast cancer but no chemo, by a stroke of luck--but I kept feeling like they were removing little parts of me, one melon ball at a time. My heart is with you.
Courage is knowing the odds, but doing it anyway. Sometimes it's weeping in the shower so you don't see your own tears. But always it is knowing that you are cherished by those who love in ways you can only suppose, and believing that you are worthy of the life that shaped those thorn-ripped words. You already have courage, Grasshopper. The pebble is already in your hand. The rest is just details.
Courage to you, do whatever you need to obtain it, to keep it. I know, easier said than done.
Powerful, per usual; so much courage behind the fear. Remember: The Wizard didn't give Lion (or the Tin Man or Scarecrow, for that matter) anything he didn't already have.
Best, always.
R
great piece --you have courage because you wrote about it! keep on going and keep on writing :)
Great piece. Writing can be very healing. All the best. ~R
Thank you. Beautifully written. My mom is dealing with a recurrence of cancer, just shy of five years after she was considered clear the first time. I sent her a link to your post.
You are all so thoughtful and encouraging. Reading your comments lifts my spirits. Heidibeth, I wish courage and hope for your mother, and medical caregivers as terrific as mine.