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Ben Sen

Ben Sen
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New York, N.Y.,
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December 31
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I'd rather be judged on the basis of my posts than anything written in my bio. It's put down and gathered as a record of my experience and a response to what I see as the important issues in the world today. I don't pretend it's anything other than subjective. The purpose is to analyse, interpret, express opinions, challenge the status quo, open a few doors, and entertain when the muse permits. I heartily welcome ratings, comments and dialogue as that is what makes this media unique and valuable. It also keeps me honest and encouraged since I'm not getting paid. Take a risk and say something; it feels better. The "conversation" is essential for the growth of the individual and the collective. I have faith it extends beyond the confines of what is said here. "For it is necessary for awake people to be awake, or a breaking line may discourge us back to sleep, the signals we give--yes, no or maybe--should be clear: the darkness around us is deep." From A RITUAL TO READ TO EACH OTHER by William Stafford

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FEBRUARY 14, 2012 1:23PM

My Battle With Mesothelioma

Rate: 34 Flag

      On Sept. 6, 2007 my wife of thirty-eight years died from Mesothelioma.  It's a disease many have heard of but know little about. Neither my wife nor I ever heard of it.  We couldn't manage to say the word for months.  "Meso" is cancer of the "pleura" or lining of the lungs caused by inhaling asbestos.     

     The chance of surviving more than two years from the time of diagnosis is five (5) per cent.  A person can be exposed years and years before, not knowing they have a time bomb ticking inside them.  Once the strands of asbestos work their way through the lungs, they lodge in the pleura where they eventually become cancerous and then begin to spread through the lining of all the internal organs.  That's what makes it so deadly. It's like a fire ignited inside of you and once it begins it can't be put out.

     Roughly 2,500 Americans die of Mesothelioma a year--80 per cent of them males in blue collar jobs.  Women who get the disease often do so as a result of contact with them.  That was not my wife's case.  While I had factory jobs many years ago, they were before I met her, and I've not been diagnosed with the disease.  Even if I had it at this point it'd be hard to tell until I started to exhibit the symptoms, i.e. the lungs filling with fluid produced by the cancer cells.  There is no Mesothelioma "test."

     There are perhaps a half dozen physicians in the United States who specialize in the disease.  Two of them were in New York City, where we lived, and fortunately my wife took to one of them, Dr. Harvey Pass, head of Thoracic Surgery at New York University. 

     Harvey and his team threw everything at Joan but the kitchen sink: chemo, a "radical pleuradectomy" where they removed her lung, lymph nodes, the lining of her chest, heart, diaphram, and internal organs, and radiation that covered half of her upper body.  It was a "run for the money" that lasted ten months to the day when an infection in her other lung brought her suffering to an end.

     Since Mesothelioma is a form of cancer that is clearly induced, and the result of negligence, during the course of her illness, we contacted a law firm and filed suit for "wrongful death."  Neither of us was crazy about filing with one of the firms advertising on billboards, subway cars, or late night TV, so I made contact through friends with a prominent, midsize lawfirm in NYC, the land of lawyers.

     After her passing, I filed the last of the necessary documents, and took their advice.  I sat and waited to hear from them, spending much of the time recuperating from my own health problems resulting from my efforts to care for her.  Three years passed before I decided to pick up the phone and then write a letter saying I thought it was time for my daughter and I to be appraised of the status of our case.

     This is where the story of my battle with Mesothelioma begins.  The responsible parties are the manfacturers of asbestos, which are some of the largest mining and natural resource manufacturing companies in the world--Three M, Congolium, Minnesota Mining, etc.  The precise culprit is identified in the autopsy when material is discovered that can be traced to who manufactured it.  In Joan's case, they couldn't find any fibers. 

     Secondly, an investigation is then conducted of former employers who could be shown to use asbestos.  There were two possibilites: the paper plant her family owned where she worked as a teenager, and the Catholic schools where she taught for eight years, during the time asbestos was being removed.  All it takes is walking through a cloud of the stuff the day workmen come to remove it, but in neither case were the attorneys able to pin down where she was exposed.  How much of a cover-up there is for the exact purpose of avoiding law suits is anybodies guess, but don't tell me it isn't done.

     That meant we were in trouble.  We weren't alone, but our options were far fewer.  The manufacturers long ago circled the wagons, probably using the same law firm we were using to chase after them, except their boys got the corner offices.  (Yes, that is a metaphor.)  We were reduced to joining multiple defendant suits where the funds are tightly controlled and divided.  The "golden age" of Meso law suits is over.

     I was told we were lucky because one such suit was about to be decided, which in the "Meso world" can mean years, if not decades, but I was also told some money had changed hands, our attorneys were in receipt of it, and after they took a third, we would receive our share, just in time for my daughter to use to help pay for graduate school. 

     That was six months ago and the amount in question is $22,431.92.  That is the value of my wife's life at least for the foreseeable future, since no other settlements are on the horizon. Try it on for size.

Joan Foley
  

$22,431.92     

     I've been advised not to write to the surrogate's court to request a speedier decision because it's a "custom" of the legal profession that plaintiffs do not go directly to the bench, regardless of what they've endured to date, and may well find their file placed on the bottom of the pile for their impudence.  Appeals through "friends of the court" in the person of elected officials is also frowned up.

     Basically, we're cooked.  While other law firms may accept the case, their ability to do any better is questionable.  While it's frustrating to keep calling and learn the latest "catch,"  as a member of the Viet Nam generation having learned that justice is more a matter of luck than course in the land of the free and home of the brave, I am neither shocked nor surprised.  

     My own health is such that I can't afford my blood pressure to rise any more than it has, and my chief concern is that my daughter not be dragged into it any more than necessary.  She's gone through enough.  I know my wife would wish nothing more than that her daughter could further her education as a result of her death.

     I'm reminded of a story my mother told me about her father, my Italian-immigrant grandfather who did very well for a time.  He lost everything in the depression, his business, his investments, his home, his cars, and eventually his family as well.  He died a derelict.  When his friends were starting to jump out of windows and stand in front of trains, my mother asked him why he didn't do so. 

     My grandfather answered:  "Because I won't give the bastards the satisfaction."  At one time, I didn't understand fully what he meant, but now I do.               

Technical credits:  Mercedes Arnao

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Go to one of the firms that specialize in plaintiffs asbestos litigation. It is a highly specialized field. I know what I'm talking about. I've been in asbestos litigation business for 30 years.
thanks STS. There's no doubt the firm specializes, and has for many years, it just doesn't advertise. i thought i made that clear.
About 20 years I looked after a patient who's husband was killed by asbestosis and who was part of a class action suit against Johns Manville, the company he worked for when he exposed. Their solution was to drive her mad by subjecting her to continuous phone harassment, stalking and break-ins. Consider yourself lucky.
I'm so sorry for what your wife went through and what you and your daughter continue to. Her picture shows your wife's beauty.
I know of mesothelioma; my father a Boilermaker by trade, had asbestosis (same thing, I understand). Sometimes people can inhale the strands off work clothes just by doing laundry, etc. Deadly, deadly stuff. I wish I could tell you differently but in my family's case (late 70's), appropriate monies were not paid. Wishing you and yours the best.

And I understand your grandfather's will as well.
Well-structured, well-written, and very sad.
I am so very sorry. There is never enough money to compensate for the loss of our loved ones.

I have just posted A DAY AT THE BEACH....the underlying theme is the colon cancer. I do not think that any compensation, except the return of my child would be acceptable to me. But I applaud your effort...it is a way to channel your anger. I hope it will not consume you too. Hard to let go.
Dear Ben Sen, I'm very sorry for the loss of your beautiful wife and all that you're going through. Anything more will just sound trivial.
My heart goes out to you, friend.
the difference between asbestosis and mesothelioma is that meso is cancerous and the other not.
Your frustration is palpable and justified; the fact that is all surrounds a needless death of someone so dear only magnifies things. My father-in-law died of the same disease over a decade ago, after working in Boston shipyards after WWII. It was already well established that asbestos was dangerous, yet every day men and women touched it, breathed it in, brought it home on their clothes.

My mother-in-law was far more fortunate in the initial settlement offering, but money is just that; it doesn't replace what is lost. Today both of my husband's parents are gone but a check of paltry amount will occasionally come from the lawyers to my father-in-law's estate (my husband is executor) to be shared among his four children (and the lawyers who receive their 33%). One of the most recent settlements was judged to be worth over $100,000, but as you said, protections are put in place and the plaintiffs are required to pay only .008 cents on the dollar (roughly $700 after the lawyer's fees). I hate when these checks arrive; they're such a cruel reminder of a loss that didn't need to be, and the paltry amounts--they add only injury to four hearts that break for a father they should have had much longer.
I am so very sorry, Ben Sen. That stinks in every sense of the word. I work in the world of trial law (I'm not a lawyer) and I'm a little familiar with these types of cases. What I do know is that companies that manufacture this stuff are very big, very heavily lawyered, and it is impossible to put a value on the life of a person. My heart goes out to you.
First your wife was beautiful Ben, I'm sure you miss you very much. Well it appears the only ones meant to make any real money are the lawyers, even though the only thing they've lost is time. It is a sad reminder that not only is life not fair sometimes it's down right cruel.
Annie:

You got it. It takes one to know one. The size of the checks is the greatest insult. The temptation is to send it back to them but I can't for my daughter's sake. You'd think a legislator on the national level would know enough to present a bill that mandated who is responsible, and that they pay commensurate to the loss, but there is no "lobby" for the interests of citizens, only the corporations. We now have a president who would be on our side, I believe, if he could, but the nation is in the hands of the lowest common denominator, not the highest, and that's the way it is....
Desnee:

Yes, she was a beauty, but a hellion. What is utterly serendipitous is that she would die from such a rare and incongruous disease given her life style. How I stayed married to her all those years is beyond my comprehension. I wrote about our relationship a year following her death. The post is titled: ON MY WIFE, JOAN. I think it's still there.

(I hope you have discovered by now the value of coming back to visit after you make a comment. Let me know.)
This is a heart breaking and common story. My own experience as a pathologist who occasionally had a lung or pleural biopsy in someone suspected of having mesothelioma was that it can be hard, first of all, to be sure that you are dealing with mesothelioma versus some forms of lung cancer. If, as a pathologist, you try to get a second opinion from an "expert" there is often a lot of hesitancy to make the diagnosis because of the legal ramifications. No one wants to spend time in pre-trial depositions and court because lawyers often treat physicians the same way the asbestos industry treated you. The exception to this is that there physicians who are often referred to as "hired guns" who work for plaintiff's attorneys and on the other side for the asbestos industry. Those people get paid a lot for being willing to testify to anything.
The result of all of the stonewalling on the part of the companies that produced asbestos products, and the percentage that gets taken by the attorneys who represent the plaintiff is that the victim's family often gets reimbursed little and late.
There are several additional things that get in the way of demonstrating a clear cut case of wrong doing. Most people who are exposed to asbestos don't get mesothelioma. There seems to be a genetic component to developing it. There are a lot of family cluster case reports. In some several members of a family that installed insulation developed the disease. In one case the installer didn't get the disease, but his wife and daughter who washed his clothes did. Also, a significant minority of cases of mesothelioma have no asbestos exposure. Other factors like viruses and radiation may be at play there.
Again, I'm truly sorry to hear about your ordeal. R
Ben,

Your wife is lovely. I am sorry for your loss and sorrier still at the injustice you've had to endure since her death. But keep up the fight, as I know you will.

We had someone close to our family recently die of "meso" as well, so I know a little of what you must have gone through five years ago. He built warships for the Navy at the Quincy shipyards near Boston back in the 1960s, which is where he came into contact with asbestos. His course was pretty much what you described.

Thank you for sharing your story.
Thanks Rodney:

My wife's doctor, Harvey Pass, has a theory there is some sort of virus involved that explains why some who are exposed get it but others do not. He never said if my wife's case helped his research. He also started the "Meso" Foundation and developed some of the surgical proceedures used.

From my standpoint, as the care giver, that made a huge difference. That meant we received some assurance she was getting the best care and with a disease with those stats that ain't hay.

The burden for me was heavy since the insurance was in my name and I selected the policy. How all these folks who have the money walk around without health insurance, and now so many are balking at Obama's new law requiring them to do so is beyond my comprehension. I think it's mostly just idiots who don't know any better. The law will protect all of us by making those who can afford to pay buy insurance and thus alleviate the stress on the rest--and I believe on doctors who may not be paid as much per patient, but will have a lot more of them.

Thanks for your input. I learned from it.
I honestly wish I could add something profoundly useful or at the very least comforting somehow, but all I can offer is that as I read this post, my heart broke for you, your wife and your daughter. The enormity of your experience commands far more than this mere empath can proffer. I hope you will meet with peace shortly as you wind your way to what may be an unsettling acceptance.

Excellent piece.

All the best to you ~R~
This is just horrible and all that I can say is thank you for telling your story. I hope that you can get some justice from this travesty.
Thank you for sharing your story with us. The picture of your wife is beautiful. How is it that some people seem to win millions and you can barely get anything? The system is not fair.
BenSen: I am so sorry for your loss, and the insult to injury during your grief. Just when I thought my opinion of lawyers couldn't get any lower... seems there is no bottom where "bottom feeders" are concerned.
I can finally understand the depth of your anger, and the insults which come your way via "settlement". I only battled 2 1/2 yrs, but today it is over, literally. You did your best, of this I feel sure.
My blessings to you, Ben. An informative and deeply sad piece. Thank you for sharing; I do hope it helps others as well as helped you, in the process of writing it.
Your juxtaposition of that dollar amount below the photo of your beautiful wife feels like a punch in the gut.

I'm so sorry for what you and all mesothelioma victims have had to go through.
Bless her, and you.
May you move from strength to strength and as easily as possible.




r.
Thanks Ben I have and I'll look for your other post as well.
as others have commented ... i'm moved by your eloquence in both presentation and spirit ... i will remember this post.
Ben I am very sorry for your loss, as long ago as it was. There is so very little that is as important as the people in our lives.

I wish your daughter the very best.
Ben, thank you for sharing your family's story. I think of it every time I hear the word "mesothelioma," usually in television ads for law firms that benefit from it.
I'm still a bit reeling as I try to comment. After reading this stunning and so exquisitely composed post (and all the preceding comments) I _did_ go to your five-years-ago post to/for/about your wife. Given the multiple thoughts and feelings this most recent post of yours stirred in me perhaps that's the best -- or maybe only? -- thing I can contribute to you. That I did read that post as well.

R+
I have no words...this is terrible. More so, I don't know how they put a dollar value on a persons life. I am so sorry.
Ben, like old new left, I too am speechless. All of this is stunning in various ways. And that is all I can muster up at the moment. You have my highest respect.
Seems much of what I might have added has already been said, but, since I have read the post after your wife's death as well, I feel compelled to at least offer up a few words. She was beautiful. You were blessed to have such a challenging, animated, thoughtful person as your partner. And you have the daughter the two of you created. You have been blessed, but crass, cold, legal flimflam is trying to suck more of life's good side out of you. I think your plan to not give the bastards any satisfaction is the way to go. I am reminded of a poster my teenage sons gave me for a birthday many decades ago: Overhead a hawk or eagle circles. On the grassy ground, a small field mouse flips off her attacker as she awaits the talons.
I'm so very sorry, Ben. The way you and your daughter are being treated is shameful. Once again, the big corporations win in spite of their neglectful behavior. Do you think we'll ever be able to live in a country which is more concerned with its people rather than its profits? Nah, I don't either.
So sorry for your loss. There's no price that can be placed on any life, especially one that enriched and inspired and touched others. I understand what your grandfather was saying, sometimes it's just not right to give the bastards the satisfaction. So you have to keep moving forward. ~R
Ben Sen,

how incredibly upsetting. Your wife deserved better and so do you and your daughter.
Aw, Ben, I'm so sorry. Your wife looks like she was beautiful inside and out. I'm with your dad. Don't give the bastards the satisfaction.

My long-ago ex's dad died of the same thing. He was a carpenter/home renovator and he knew how he got it. It's unconscionable that our current right-wing pig of a prime minister is pushing asbestos mining yet again and exporting it to Third World countries. He makes me ashamed to be Canadian.
I would have been moved by your story -and Christ, the picture of your dear wife - if it was written by an idiot. It was not. You told it very well. To do that, with this, takes real skill.